After this matter was published, we have received feedback that means we have extended case. See the quotation from neurologist Morten Horn bottom of the case.
It is the renowned Institute of Medicine in the United States who has recently published report Beyond ME / CFS syndrome: Redefining an Illness.
Professor Ellen Wright Clayton at Vanderbilt University has led the work on the report, which largely concluded in the disputed issue of ME is a physical or mental disorder.
– Now we must once and for all bury the idea that this is just a psychosomatic illness. This is a real disease, with real physical ailments that must be identified and treated, said Clayton Washington Post when the report was made public.
– Interesting findings
IMPORTANT REPORT: – The new criteria is easier to use, and can be a good starting point to set the right diagnosis, said Dr. Ingrid Helland at resource service for ME. Photo: NRK
The report is referred to as the most important and thorough as anything ever done on ME field. Researchers still know not the cause of the disease, but launches new criteria so that it will be easier to make a diagnosis (see fact box).
The National expertise service for ME at Oslo University ses worked on with great interest.
– This is a very important report, and it’s done a solid work to set diagnostic criteria and try to get the essence of what this condition is, said Dr. Ingrid Helland NRK.
Today’s diagnostic criteria has long been debated, and some have been so extensive that they have included almost all patients with unexplained chronic fatigue.
– The new criteria are better suited how we experience patients. Those affected are seriously ill and have significantly reduced quality of life and function. We have met the patients know that there is an imaginary condition, says superior.
Must be taken seriously
MUST COME FORWARD: – The report states that is something physically wrong with these patients. ME is no imaginary disorder, says Jørgen Jelstad.
Research Journalist Jørgen Jelstad, who has written a book about ME, hope the US report will lead to ME sufferers are now being taken more seriously.
– It is important that professionals here at home sits well into report. There has been too much guesswork surrounding this disease, also in the Norwegian public believes Jelstad.
The report also states that the name chronic fatigue syndrome is stigmatizing and seems trivializing for patients.
Consultant Ingrid Helland is positive to any change (see fact box).
– The new name does not regulate what is the cause of this condition. That’s good, as long as it is unknown. The name is difficult to translate, but easy to pronounce. This will be further discussed enough, she says.
Skeptical
Consultant at Oslo University, Morten Horn, do not think the report will make it easier for researchers. Photo: Kristin Østgård
Physician Morten Horn at the Department of Neurology at Oslo University is uncertain whether the new diagnostic criteria will solve the challenges of research on this disease, although they might be useful in clinical use.
Horn points out that the new criteria based on patients’ performance and subjective symptoms. He believes it may be difficult to distinguish those who should have diagnosed chronic fatigue syndrome (CFS), from other states of exhaustion and reduced functioning. The report does not say anything how this concrete should be tested.
– I am skeptical about whether one gets to create effective scoring tool. It will still be difficult for the researchers, says Horn.
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